We’ve been quietly doing our best, one day at a time. Life has been full — full of emotions, growth, grief, and deep love. Xander is halfway through his last year of middle school and going through a tough time mentally and emotionally. We’re doing everything we can to support him, and we would be so grateful for your prayers — especially as we navigate school, health concerns, and new therapy.
Greg’s been making progress with his desk setup and video gaming, and he and Xander playing together has been such a bright spot. One special moment we’ll always remember: Xander learning to tie a tie, and choosing one of Greg’s to wear — a memory that reminded us why we hold on to certain things.
Sharing these photos and these words to ask for prayer, especially for Xander — for strength, peace, and clarity in this season of change. Thank you for being here with us.
I haven’t been on here much. We just keep pushing forward trying to do the best we can. Here are some pictures over the last few months.
Greg has a new desk set up, has upgraded his quad stick and he and Xander can now play together in the same video game. Which has been really great for them both.
Xander is half way through his last year in middle school. He will be a freshman next year. I can hardly wrap my brain around it. Pray for his success in midterms next week. He is a very intelligent artistic young man. He is struggling mentally and emotionally. We are doing everything we physically can for him to support and love and guide him. We have a sleep study coming up, he had obstructive sleep apnea and 2 years ago had his tonsils, adenoids removed and turbinates reduced.
He is still dealing with chronic sleep issues. We are trying to rule out mild narcolepsy. He has pectus excavatum. So we are working with a personal trainer to increase strength and stamina and confidence. He will have to get the surgery closer to his later years in highschool. It is quite the surgery. PRAY! I think sharing this information is simply my way of asking for help to pray instead of carry all this mothering worrisome angst around.
I kept Greg’s ties. When he told me to get rid of them initially, I kept them. I was thinking I could give them as gifts to his friends, keep them for Xander and maybe even donate one or two. The truth is: when I was alone with them the overwhelming grief of it all was just to much. I couldn’t give them away. Xander learned how to tie his own tie and he chose one of Greg’s ties to wear. One of the pictures is Greg seeing it for the first time. Those are the emotions I hope for when I hold onto something for later.
Enjoy the pictures. Pray for Xander. He is going through a really tough time with our regular life, adolescent transitions, intermittent remote schooling, mask wearing, etc. He and I have gone through periods of trauma therapy and due to Covid the sessions are now Virtual. I have decided and made the appointment for him to move to another program that is still taking in person sessions, with Covid precautions in place. Pray for him. Pray over the process of school.
Pray for him having to wear a mask all day. Pray for him to leave what doesn’t matter alone and behind him.